The VHL Alliance

The VHL Alliance is dedicated to RESEARCH, EDUCATION, and SUPPORT to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

Our vision is Curing Cancer through VHL. The VHL gene is in all of us, helping to suppress the growth of tumors. Those with a flaw in this gene are prone to develop tumors throughout their bodies. Researchers are racing to identify and control the pathways that allow tumor growth in VHL and other cancers. Their progress provides hope for all of us by Curing Cancer through VHL.

Founded in 1993, the VHL Alliance (VHLA) is the world’s leading organization supporting von Hippel-Lindau Syndrome. We are a 501(c)3 nonprofit dedicated to improving the lives and optimizing the treatment of those affected VHL while aggressively pursuing a cure.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

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Patient Worthy Posts on VHL