Перепечатано с разрешения Findacure.org Сегодняшний гостевой блог написан Полли Мойер, соучредителем британской страницы «Действия в Связи с Синдромом Маль де Дебарке» Великобритания и основателем группы Familial MdDS на Facebook. Здесь…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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