Как известно многим пациентам с редкими заболеваниями, иногда бывает сложно поставить правильный диагноз. Фактически, средний период времени от появления симптомов до постановки диагноза составляет около 4,8-5 лет. В случае хронического…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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