Мы до сих пор не совсем понимаем ряд редких заболеваний. Отсутствие осведомленности, отсутствие интереса и отсутствие финансирования - все это играет определенную роль, и медицинские работники просто еще не могут…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor — ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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