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Losing 150 lbs and Living with Dystonia

Losing 150 lbs and Living with Dystonia

In the summer of 2001, my neck muscles began to involuntarily contract, causing my head to pull to the right. I had no idea what was wrong. My doctors were…

Continue Reading Losing 150 lbs and Living with Dystonia
You’ll Love The Courage of This Little Boy With Cancer AND Dystonia

You’ll Love The Courage of This Little Boy With Cancer AND Dystonia

He’s a cop who works three additional part-time jobs to make ends meet. She’s a homemaker now, taking care of their three children, ages seven, three and a half, and…

Continue Reading You’ll Love The Courage of This Little Boy With Cancer AND Dystonia
How Do You Make Dystonia Disappear? Madonna!

How Do You Make Dystonia Disappear? Madonna!

When all else fails and you long to be Something better than you are today I know a place where you can get away It's called a dance floor, and…

Continue Reading How Do You Make Dystonia Disappear? Madonna!
Do You Have What It Takes To Complete Your Dystonia Destiny?

Do You Have What It Takes To Complete Your Dystonia Destiny?

Do you want to be part of cervical dystonia history? Do you want to actually get paid to take an injection to treat your symptoms? C'mon, you know the answer…

Continue Reading Do You Have What It Takes To Complete Your Dystonia Destiny?
Cervical Dystonia Wasn’t in the Plot, But It Sure Changed the Story

Cervical Dystonia Wasn’t in the Plot, But It Sure Changed the Story

Michael White, a 45-year-old writer from Vancouver, British Colombia, put everything he had on the line to take a leap of faith and write a book about his passion: music.…

Continue Reading Cervical Dystonia Wasn’t in the Plot, But It Sure Changed the Story
Dystonia Robs Many Musicians of Their Greatest Gift

Dystonia Robs Many Musicians of Their Greatest Gift

You spent years taking piano lessons, spent thousands of hours practicing, and were enjoying your professional career with an orchestra. Then IT happened. Every time you sit down on the piano bench, your…

Continue Reading Dystonia Robs Many Musicians of Their Greatest Gift
Announcement: Cervical Dystonia Clinical Trial

Announcement: Cervical Dystonia Clinical Trial

Are you an adult with isolated cervical dystonia? Wake Forest (Winston Salem, NC) is running a clinical trial of a new botulinum toxin. For more information click here. Or contact:…

Continue Reading Announcement: Cervical Dystonia Clinical Trial
New Year, New Me: Embracing the Dystonia Blur

New Year, New Me: Embracing the Dystonia Blur

The end of 2015 brought a lot of changes into my life, some unplanned - and frankly - a little scary. I lost my job, and at the same time…

Continue Reading New Year, New Me: Embracing the Dystonia Blur
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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