Cervical Dystonia Wasn’t in the Plot, But It Sure Changed the Story

Michael White, a 45-year-old writer from Vancouver, British Colombia, put everything he had on the line to take a leap of faith and write a book about his passion: music.

He gave his employer two months notice and then he and his partner moved from Ontario to Vancouver. Everything was going according to plan. His book had been picked up by a publisher and a big party was planned in London to celebrate. What White didn’t know at the time, was he would not be able to attend.

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Michael White–author extrodinaire–had to put his dreams on hold when he was diagnosed with cervial dystonia.

What happened? Cervical dystonia happened.

Suddenly, and without warning, White’s head began to be drawn back and to the left; typing became almost impossible as his discomfort increased. Six weeks later, he was having tremors that lasted all day and all night, which prevented him from sleeping and rendered him completely exhausted.

It’s never a good time to develop a rare neurological disorder, but it’s especially hard when you’ve bankrolled your dream and funds are low.

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Looking for a good read? White’s book, “Pop Kiss: The Life and Afterlife of Sarah Records,” is available on Amazon!

White learned of a holistic treatment center in New Mexico that he set his heart on, but without some outside help, it was beyond his reach. That’s when his friends jumped into action: they set up a Go Fund Me page and within 24 hours, their goal had been exceeded. White is grateful not only to those who rallied to help him, but also to his parents whose support was so important throughout his diagnosis.


Erica Zahn

Erica Zahn

Erica Zahn is passionate about raising awareness of rare diseases and disorders and helping people connect with the resources that may ease their journey. Erica has been a caregiver, and is a patient, herself, so she completely relates to the rare disease community--on a deeply personal level.

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