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Radio Presenter Discusses Getting Diagnosed with Dystonia

Radio Presenter Discusses Getting Diagnosed with Dystonia

According to a story from Yahoo! News, Huw Williams, a notable UK radio presenter, was just days away from performing in front of Bruce Springsteen when he was diagnosed with…

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September is Dystonia Awareness Month What is Dystonia and What Does it Feel Like?

September is Dystonia Awareness Month What is Dystonia and What Does it Feel Like?

September is Dystonia Awareness Month, so I want to share a little about it and how it impacts those of us who live with it. Please share this with your…

Continue Reading September is Dystonia Awareness Month What is Dystonia and What Does it Feel Like?
DAXXIFY Now FDA-Approved for the Treatment of Cervical Dystonia

DAXXIFY Now FDA-Approved for the Treatment of Cervical Dystonia

  In 2022, the U.S. Food and Drug Administration (FDA) approved DAXXIFY® (DaxibotulinumtoxinA-lanm) for the temporary treatment of fine lines and wrinkles. Many people touted DAXXIFY as a "Botox alternative."…

Continue Reading DAXXIFY Now FDA-Approved for the Treatment of Cervical Dystonia
Living with Dystonia – A Story of Overcoming Adversity

Living with Dystonia – A Story of Overcoming Adversity

On April 26th, I had the honor of speaking at the American Brain Foundation’s Commitment to Cures fundraising dinner during the American Academy of Neurology annual convention in Boston. I…

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How Photography Helps Take my Mind off my Pain from Dystonia

How Photography Helps Take my Mind off my Pain from Dystonia

I have lived with dystonia (a neurological movement disorder) and chronic pain for over 20 years. The very active life prior to dystonia is night and day compared to the forced sedentary…

Continue Reading How Photography Helps Take my Mind off my Pain from Dystonia
Study Data Available: ABP-450 for Cervical Dystonia

Study Data Available: ABP-450 for Cervical Dystonia

  According to a late September 2022 news release from biopharmaceutical company AEON Biopharma, Inc., positive topline data is available from a clinical trial evaluating ABP-450 for patients with cervical…

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How Life Before and After Chronic Pain from Dystonia Changed My Entire World

How Life Before and After Chronic Pain from Dystonia Changed My Entire World

For most of my 21 years with chronic pain and other symptoms from dystonia, a neurological movement disorder, I viewed it as a curse; an evil intruder that ruined my life.…

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Editor’s Choice: A New Dystonia Center of Excellence, A Call for Sickle Cell Blood Donors, and a New Treatment Target for Glioblastoma

Editor’s Choice: A New Dystonia Center of Excellence, A Call for Sickle Cell Blood Donors, and a New Treatment Target for Glioblastoma

Happy Friday! A tropical storm system will be traveling up through the mid-Atlantic this weekend, bringing wind and rain. Hunker down! This week, we have stories on Duke University being…

Continue Reading Editor’s Choice: A New Dystonia Center of Excellence, A Call for Sickle Cell Blood Donors, and a New Treatment Target for Glioblastoma
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