Living with Dystonia – A Story of Overcoming Adversity

On April 26th, I had the honor of speaking at the American Brain Foundation’s Commitment to Cures fundraising dinner during the American Academy of Neurology annual convention in Boston. I was given a few minutes to share my dystonia story. The emcee of the event was Jim Cramer, host of CNBC’s Mad Money (migraine sufferer), and featured the latest research developments, inspiring stories from people living with brain disorders, and special guests, including virtual appearances from Huffington Post founder Arianna Huffington and singer Peter Frampton (Inclusion-Body Myositis). Below is a video of my speech if you would like to check it out. You can also click here to go directly to the video.

My history with the American Brain Foundation
Going back a year or so, I originally contacted the American Brain Foundation to discuss some ideas for sharing more about dystonia and chronic pain on their website. A few months later they contacted me to do an interview to help spread awareness and how we can help their foundation. This was very important to me, as 1 in 6 people suffer with a brain disorder. That’s nearly 1 billion people worldwide.

Two hours of taping turned into a 2-minute video where they captured my story very well, to which I hope many of you can relate because I know so many who have been through and are going through the same physical and emotional challenges. Please click here to watch it. I am so grateful for this opportunity to spread awareness and I hope you like it. You can also click here to read an article about my dystonia/chronic pain story that accompanies the blog. It is called, Challenging Dystonia: A Story of Transformation and Perseverance.

If you are living with dystonia or any form of neurologic/brain disorder, or know someone who is, please share this information with them in hopes that they might be able to find more answers to the issues facing them, as well as support the American Brain Foundation and other foundations that are working on our behalf. Thank you.

Tom Seaman

Tom Seaman

Tom Seaman is a Certified Professional Life Coach in the area of health and wellness, and author of 2 books: Diagnosis Dystonia: Navigating the Journey and Beyond Pain and Suffering: Adapting to Adversity and Life Challenges. He is also a motivational speaker, chronic pain and dystonia awareness advocate, health blogger, volunteer for the Dystonia Medical Research Foundation (DMRF) as a support group leader, and is a member and writer for Chronic Illness Bloggers Network.To learn more about Tom, get a copy of his books (also on Amazon), or schedule a free life coaching consult, visit Follow him on Twitter @Dystoniabook1 and Instagram.

Share this post

Share on facebook
Share on twitter
Share on linkedin
Share on pinterest
Share on print
Share on email