Search Results for “dystonia” – Page 32

How to Find Stillness in Your Life

By Tom Seaman If you are like me and probably most people, in today’s busy world it is a big challenge to be still and mentally at ease. This is…

Holidays with a Chronic Illness

Thinking about the year-end holidays brings up a kaleidoscope of images, and an array of emotions for me. And everyone else too, I imagine. There are the vivid memories of…

Pantethine Studied for Efficacy in Treating Pantothenate Kinase-Associated Neurodegeneration in Children

by Lauren Taylor from In The Cloud Copy Pantothenate kinase-associated neurodegeneration or PKAN is a rare, inherited condition in which the affected child experiences progressive degeneration in certain parts of…

Rare Classroom: Blepharospasm

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

Experimental Gene Therapy for GM1 Gangliosidosis Earns Rare Pediatric Disease Designation

According to a story from BioSpace, the gene therapy company Axovant Gene Therapies Ltd. recently announced that it has been given Rare Pediatric Disease designation from the US Food and…

Corticobasal Degeneration

Corticobasal DegenerationWhat is corticobasal degeneration?Corticobasal degeneration is a rare neurological condition that causes cell death and deterioration of certain parts of the brain. Affected individuals experience motor, cognitive, and behavioral…

Juvenile Huntington’s Disease Linked to School and Social Problems

When children have problems at school, it is often linked to something bigger going on in another aspect of their life, whether that is at home or with friends. A…

Editor’s Choice: The Financial Burden on MS Patients

Happy Friday! September is a packed with rare disease awareness, as we've been featuring all month long. We wanted to make sure to draw attention to Dystonia Awareness Month, which…