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How Getting Diagnosed With POTS Changed My Life: A Patient Story

How Getting Diagnosed With POTS Changed My Life: A Patient Story

The Beginning My story began in February 2011. On January 10th, 2011, my husband and I were involved in an accident in which we slid off the side of a bridge 10 feet face…

Continue Reading How Getting Diagnosed With POTS Changed My Life: A Patient Story
Rare Disease Treatments Cleared For Coverage on NHS Scotland

Rare Disease Treatments Cleared For Coverage on NHS Scotland

According to a story from Pharma Times, four new medications were recently approved for coverage on the Scottish NHS by the Scottish Medicines Consortium (SMC). Some of these drugs are…

Continue Reading Rare Disease Treatments Cleared For Coverage on NHS Scotland
ICYMI: This Unique Chemotherapy Treatment Offers Renewed Hope For Patients

ICYMI: This Unique Chemotherapy Treatment Offers Renewed Hope For Patients

According to a story from KVIA, the University Medical Center at El Paso, Texas, is offering an innovative "hot" chemotherapy treatment that has the potential to treat a variety of…

Continue Reading ICYMI: This Unique Chemotherapy Treatment Offers Renewed Hope For Patients
Chemo Can Save Lives, But More Approaches Are Needed To Handle Its After Effects

Chemo Can Save Lives, But More Approaches Are Needed To Handle Its After Effects

According to a story from healthline.com, many cancer survivors that have been treated with chemotherapy wind up facing significant challenges after their treatment. One such example is a phenomenon known…

Continue Reading Chemo Can Save Lives, But More Approaches Are Needed To Handle Its After Effects
Research Suggests That PARP Inhibitors Have More Potential Than Previously Thought

Research Suggests That PARP Inhibitors Have More Potential Than Previously Thought

According to a story from Fierce Biotech, recent research is highlighting the possibility that PARP inhibitors, a type of targeted therapy that it mostly used to treat breast cancer and…

Continue Reading Research Suggests That PARP Inhibitors Have More Potential Than Previously Thought
Positive Genetic Test Results for Rare Disease Risk are not Necessarily a Cause for Alarm

Positive Genetic Test Results for Rare Disease Risk are not Necessarily a Cause for Alarm

According to a story from Global News, direct-to-consumer genetic tests are becoming increasingly popular. These tests can be used to learn new info about your ancient ancestors, closer relatives, and,…

Continue Reading Positive Genetic Test Results for Rare Disease Risk are not Necessarily a Cause for Alarm
Experimental Treatment for Dermatomyositis Fails to Meet Endpoints in Phase 2 Trial

Experimental Treatment for Dermatomyositis Fails to Meet Endpoints in Phase 2 Trial

According to a story from globenewswire.com, the biopharmaceutical company Idera Pharmaceuticals recently released the data from its Phase 2 trial for IMO-8400, an investigational product in development for the treatment…

Continue Reading Experimental Treatment for Dermatomyositis Fails to Meet Endpoints in Phase 2 Trial
Novel Multiple Myeloma Treatment Granted Orphan Drug Designation

Novel Multiple Myeloma Treatment Granted Orphan Drug Designation

According to Globe Newswire, the United States Food and Drug Administration (US FDA) designated a new orphan drug for the treatment of multiple myeloma on May 9th, 2018. The drug…

Continue Reading Novel Multiple Myeloma Treatment Granted Orphan Drug Designation
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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