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Independent Data Review Gives Go-Ahead for Rett Syndrome Clinical Trial

Independent Data Review Gives Go-Ahead for Rett Syndrome Clinical Trial

According to a story from Financial Buzz, the biopharmaceutical company Anavex Life Sciences Corp. has recently announced that the Independent Data Safety Monitoring Board (DSMB) has completed its review of…

Continue Reading Independent Data Review Gives Go-Ahead for Rett Syndrome Clinical Trial
NeuroGen to Host No-Charge Outpatient Stem Cell Therapy Consultation Camp in Chandigarh

NeuroGen to Host No-Charge Outpatient Stem Cell Therapy Consultation Camp in Chandigarh

According to a publication from NewZNew, the NeuroGen Brain and Spine Institute in India plans on hosting an outpatient stem cell therapy consultation camp in Chandigarh on the last day…

Continue Reading NeuroGen to Host No-Charge Outpatient Stem Cell Therapy Consultation Camp in Chandigarh
Tanzanian Girl With Gaucher Disease to Receive Treatment Through Critical Program

Tanzanian Girl With Gaucher Disease to Receive Treatment Through Critical Program

According to a story from Direct Relief, when Yusra was just a year old, she began to have mysterious bouts of fever. Her family had no explanation. By age three,…

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First Patient Registered for Phase 3 Multiple System Atrophy Clinical Trial

First Patient Registered for Phase 3 Multiple System Atrophy Clinical Trial

According to a story from PR Newswire, the biopharmaceutical company Biohaven Pharmaceutical Holding Company, Ltd. has announced that the first patient has signed up for the company's phase 3 clinical…

Continue Reading First Patient Registered for Phase 3 Multiple System Atrophy Clinical Trial
Drug Company Releases App to Monitor Biomarkers for Gaucher Disease Patients

Drug Company Releases App to Monitor Biomarkers for Gaucher Disease Patients

According to a story from Gaucher Disease News, the German drug company Centogene has recently released a free smartphone app called MyLSD which will allow patients with Gaucher disease monitor…

Continue Reading Drug Company Releases App to Monitor Biomarkers for Gaucher Disease Patients
New “Wrist Watch” Will Monitor Parkinson’s Disease and Connect Patients to Doctors Remotely

New “Wrist Watch” Will Monitor Parkinson’s Disease and Connect Patients to Doctors Remotely

Parkinson’s disease can be a hard disease to manage. Not only does it take a physical and emotional toll on patients and loved ones, but managing every day activities can…

Continue Reading New “Wrist Watch” Will Monitor Parkinson’s Disease and Connect Patients to Doctors Remotely
New Rare Disease Discovery, Made Possible By Research

New Rare Disease Discovery, Made Possible By Research

The San Francisco Chronicle had a pretty neat story about how one man's post-cancer neurological issues lead to a so-rare-it's-still-unnamed disease diagnosis. And tracking how we got to the movement…

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Researchers Discover Method for Slowing The Progression of PKAN

Researchers Discover Method for Slowing The Progression of PKAN

According to a story from ScienceBlog, the results of an international research study which was led by a team of scientists in Oakland, California and Munich, Germany, has led to…

Continue Reading Researchers Discover Method for Slowing The Progression of PKAN
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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