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Critical Treatment for Gaucher Disease Gets Expanded Coverage in South Korea

Critical Treatment for Gaucher Disease Gets Expanded Coverage in South Korea

According to a story from Korea Biomedical Review, the Sanofi Genzyme Korea, a subsidiary of the pharmaceutical company Sanofi, recently issued an announcement stating that the South Korean Ministry of…

Continue Reading Critical Treatment for Gaucher Disease Gets Expanded Coverage in South Korea
Study Suggests that Spleen Artery Aneurysms May be more Common in Gaucher Disease than Previously Thought

Study Suggests that Spleen Artery Aneurysms May be more Common in Gaucher Disease than Previously Thought

According to a story from Gaucher Disease News, a recently published case report study suggests that instances of splenic artery aneurysm are being underreported in patients with Gaucher disease. The…

Continue Reading Study Suggests that Spleen Artery Aneurysms May be more Common in Gaucher Disease than Previously Thought
Theranexus Releases Early Data from its Narcolepsy Clinical Trial

Theranexus Releases Early Data from its Narcolepsy Clinical Trial

According to a story from finanznachrichten.de, the biopharmaceutical company Theranexus has recently released preliminary results from a Phase II clinical trial that is testing the company's experimental product THN102. This…

Continue Reading Theranexus Releases Early Data from its Narcolepsy Clinical Trial
Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought

Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought

For years the accepted estimate of multiple sclerosis (MS) patients living in the United States was 400,000. A recent study, funded by the National Multiple Sclerosis Society (NMSS) has confirmed that number is…

Continue Reading Study Confirms Multiple Sclerosis is Twice as Prevalent as We Thought
Recent Study Demonstrates Smartphone App’s Ability to Detect Early Signs of Movement Disorders

Recent Study Demonstrates Smartphone App’s Ability to Detect Early Signs of Movement Disorders

According to a story from Parkinson's News Today, a recent study describes the ability of an innovative smartphone app that uses touch-based input in order to detect the early signs…

Continue Reading Recent Study Demonstrates Smartphone App’s Ability to Detect Early Signs of Movement Disorders
RARE2019 Conference to Take Place this Week in Austria

RARE2019 Conference to Take Place this Week in Austria

Second Annual International Congress on Advanced Treatments in Rare Diseases The first International Congress on Advanced Treatments in Rare Diseases, otherwise known as RARE2018, was held in London, England. Now,…

Continue Reading RARE2019 Conference to Take Place this Week in Austria
New Technology Could Predict Progression in Amyotrophic Lateral Sclerosis

New Technology Could Predict Progression in Amyotrophic Lateral Sclerosis

Researchers at BGN Technologies (at Ben-Gurion University) have come up with a new way to predict and monitor progression of a wide array of neurodegenerative diseases. One of the illnesses…

Continue Reading New Technology Could Predict Progression in Amyotrophic Lateral Sclerosis
Passage Bio Receives New Funding to Advance 5 Gene Therapy Projects

Passage Bio Receives New Funding to Advance 5 Gene Therapy Projects

Passsage Bio Passage Bio has just announced that they've received 115.5 million dollars to help advance their development of gene therapies. They will begin by using the funds to further…

Continue Reading Passage Bio Receives New Funding to Advance 5 Gene Therapy Projects
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The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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