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Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy

Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy

According to a story from edinburghnews.com, mother Karen Gray is about to seek access to cannabidiol oil for her five-year-old son, Murray, who has a rare type of epilepsy, Myoclonic Astatic…

Continue Reading Scottish Mother Prepares to Obtain Cannabidiol Oil For Her Son With Rare Epilepsy
Recent Research Has Led to a New Approach For Treating Huntington’s Disease

Recent Research Has Led to a New Approach For Treating Huntington’s Disease

According to a story from the National Center for Advancing Translational Sciences, a group of scientists from the National Institutes of Health (NIH) has unearthed a new mechanism that could…

Continue Reading Recent Research Has Led to a New Approach For Treating Huntington’s Disease
This Gene Could Play a Major Role in Progressive Supranuclear Palsy

This Gene Could Play a Major Role in Progressive Supranuclear Palsy

According to a story from asianscientist.com, a group of Japanese researchers have managed to unearth a genetic mutation that is associated with progressive supranuclear palsy. The discovery is helping scientists…

Continue Reading This Gene Could Play a Major Role in Progressive Supranuclear Palsy
A Young Girl With Mitochondrial Disease Sees Snow For the First Time

A Young Girl With Mitochondrial Disease Sees Snow For the First Time

According to a story from Central Texas News Now, a four-year-old girl with an extremely rare form of mitochondrial disease got her wish to see snow. The girl, Scarlett Landry,…

Continue Reading A Young Girl With Mitochondrial Disease Sees Snow For the First Time
A Drug That Can Mimic Exercise May Be Closer Than You Thought

A Drug That Can Mimic Exercise May Be Closer Than You Thought

Scientists in California at Salk Institute for Biological Studies are currently developing a drug that can mimic the effects in the body usually obtained from exercise, reports the National Post.…

Continue Reading A Drug That Can Mimic Exercise May Be Closer Than You Thought
A Unique Experimental Treatment Just Got Orphan Drug Designation for Huntington’s Disease

A Unique Experimental Treatment Just Got Orphan Drug Designation for Huntington’s Disease

According to a story from Morningstar, the pharmaceutical company Emerald Health Pharmaceuticals announced that its drug candidate EHP-102 was given Orphan Drug Designation by the U.S Food and Drug Administration…

Continue Reading A Unique Experimental Treatment Just Got Orphan Drug Designation for Huntington’s Disease
Elizabeth Jane Allen, Woman Who Made Lasting Impact on Cystic Fibrosis Community, Dies at 85

Elizabeth Jane Allen, Woman Who Made Lasting Impact on Cystic Fibrosis Community, Dies at 85

Elizabeth Jane Allen, known best as "Betty", will be honored this week for the wonderful woman she was and the lasting impact she has made on the cystic fibrosis community, reports…

Continue Reading Elizabeth Jane Allen, Woman Who Made Lasting Impact on Cystic Fibrosis Community, Dies at 85
Editor’s Choice: When Sandwiches and Air Horns Change Lives

Editor’s Choice: When Sandwiches and Air Horns Change Lives

Welcome back, Patient Worthians! This week, we have an opportunity for Parkinson's patients, and an update on an Amyloidosis app. We also have two stories of teenagers whose lives suddenly…

Continue Reading Editor’s Choice: When Sandwiches and Air Horns Change Lives
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Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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