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Rare Disease Week: Rare Disease Treatments Approved in 2021

Rare Disease Week: Rare Disease Treatments Approved in 2021

It's officially Rare Disease Week, which is being celebrated from February 22nd until March 2nd. Every year, we take this week to to recognize, support, raise awareness, and advocate for…

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AllStripes: How this HealthTech Company Leverages Science to Advance Rare Disease Research (Pt. 2)

AllStripes: How this HealthTech Company Leverages Science to Advance Rare Disease Research (Pt. 2)

Nancy Yu co-founded AllStripes with a vision in mind: to unlock more treatment options for those with rare diseases. In Part 1 of our interview, Patient Worthy sat down with…

Continue Reading AllStripes: How this HealthTech Company Leverages Science to Advance Rare Disease Research (Pt. 2)
Study of the Week: The High Cost Burden of Rare Diseases

Study of the Week: The High Cost Burden of Rare Diseases

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

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AllStripes Secures $50 Million for Rare Disease Research

AllStripes Secures $50 Million for Rare Disease Research

Developing therapies for rare diseases can be difficult, and it often requires effort from many different players. Recently, AllStripes has made large steps forward in rare disease research by securing…

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PiPeD Offers New Surgical Technique for Pediatric Moyamoya Disease

PiPeD Offers New Surgical Technique for Pediatric Moyamoya Disease

Sometimes, different surgical techniques are required to operate on adults as opposed to children. For example, surgical revascularization is used to treat pediatric patients with Moyamoya disease - though it…

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We Need Equity and Diversity Within Rare Disease Research

We Need Equity and Diversity Within Rare Disease Research

Rare diseases face many obstacles when it comes to research and drug development. Small patient populations, a lack of awareness, and limited funding are just a few examples. When it…

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Study of the Week: Noninvasive Biomarker Discovered for Moyamoya Disease

Study of the Week: Noninvasive Biomarker Discovered for Moyamoya Disease

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: Noninvasive Biomarker Discovered for Moyamoya Disease
New Gene Therapy Approach Using CRISPR Shows Promise for Rare Diseases

New Gene Therapy Approach Using CRISPR Shows Promise for Rare Diseases

Gene therapy is a recent development in the industry, and it is one that has brought hope to many people who live with a genetic condition without a viable treatment…

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*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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