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Editor’s Choice: Rare Patient Innovation and Support

Editor’s Choice: Rare Patient Innovation and Support

Happy Thursday everyone! This week, we're highlights two stories about patients taking action to solve problems in their life: one patient innovates to improve their care, and another starts a…

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Initial Trial Data Looks Promising for a Potential Treatment for Rare Epilepsies

Initial Trial Data Looks Promising for a Potential Treatment for Rare Epilepsies

According to a story from sectorpublishingintelligence.co.uk, the drug company Ovid Therapeutics Inc. has recently announced that the early data from its phase 2 clinical trial is mostly encouraging. This clinical…

Continue Reading Initial Trial Data Looks Promising for a Potential Treatment for Rare Epilepsies
Trial Demonstrates The Effectiveness of Haegarda in Treating Hereditary Angioedema Attacks

Trial Demonstrates The Effectiveness of Haegarda in Treating Hereditary Angioedema Attacks

According to a story from Angioedema News, a recent study demonstrated the effectiveness of the medication Haegarda in reducing the number of swelling attacks experienced by hereditary angioedema patients. Preventative…

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In Honor of Tay-Sachs Disease Awareness Month Organizations are Teaming Together to Spread Awareness of Genetic Testing

In Honor of Tay-Sachs Disease Awareness Month Organizations are Teaming Together to Spread Awareness of Genetic Testing

Tay-Sachs Disease September is Tay-Sachs Disease Awareness Month. Voted on by the Senate unanimously in 2008, this month aims to spread awareness about this disease and the importance of carrier…

Continue Reading In Honor of Tay-Sachs Disease Awareness Month Organizations are Teaming Together to Spread Awareness of Genetic Testing
Potential Congenital Adrenal Hyperplasia Drug Treatment Clears Hurdle

Potential Congenital Adrenal Hyperplasia Drug Treatment Clears Hurdle

Some promising news for the congenital adrenal hyperplasia (CAH) community! Spruce Biosciences is one step closer to a treatment for CAH after new phase 2a data showed the drug reduced…

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Biogen Releases The Latest Research Results Featuring its Multiple Sclerosis Drugs

Biogen Releases The Latest Research Results Featuring its Multiple Sclerosis Drugs

According to a story from sectorpublishingintelligence.co.uk, studies utilizing data gathered in the real-world treatment setting are highlighting the characteristics of two different therapies for multiple sclerosis (MS) developed by the…

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A Medical Mystery and a Mother’s Intuition: Part 1 of Aunika’s Story

A Medical Mystery and a Mother’s Intuition: Part 1 of Aunika’s Story

Every ultrasound Maggie had showed that her daughter, Aunika, was perfectly fine. The family was left in shock when she was born struggling to breathe.  Baby Aunika was rushed to…

Continue Reading A Medical Mystery and a Mother’s Intuition: Part 1 of Aunika’s Story
Infant With Juvenile Myelomonocytic Leukemia Successfully Treated With Liver Cancer Drug

Infant With Juvenile Myelomonocytic Leukemia Successfully Treated With Liver Cancer Drug

According to a story from Science Daily, the University of California San Francisco's Benioff Children's Hospitals have successfully treated an infant with juvenile myelomonocytic leukemia. The drug used for treatment…

Continue Reading Infant With Juvenile Myelomonocytic Leukemia Successfully Treated With Liver Cancer Drug
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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