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Irish College Awarded €200,000 Towards Breast Cancer Research

Irish College Awarded €200,000 Towards Breast Cancer Research

According to DublinLive, a team of scientists at the Royal College of Surgeons in Ireland has this week been awarded €200,000 by the research charity Breast Cancer Now, in order…

Continue Reading Irish College Awarded €200,000 Towards Breast Cancer Research
Me, Myself, and Eye: Dan’s Experiences with Two Rare Diseases

Me, Myself, and Eye: Dan’s Experiences with Two Rare Diseases

This weekend Patient Worthy attended RAREfest, an event held in the UK by the Cambridge Rare Disease Network. It brings together patients and their families, researchers, doctors, and the public to…

Continue Reading Me, Myself, and Eye: Dan’s Experiences with Two Rare Diseases
Positive Results from Safety Trial of CBD for Refractory Pediatric Epilepsy

Positive Results from Safety Trial of CBD for Refractory Pediatric Epilepsy

INSYS Therapeutics has just released data from their long-term safety study of CBD as a treatment for refractory pediatric epilepsy. The results were positive and we're excited about the future…

Continue Reading Positive Results from Safety Trial of CBD for Refractory Pediatric Epilepsy
Presentations Demonstrate Promising Advances in Blood Cancers and Blood Disorders

Presentations Demonstrate Promising Advances in Blood Cancers and Blood Disorders

According to a story from PR Newswire, presentations at the 60th annual American Society of Hematology Meeting and Exposition are highlighting the results of four large scale clinical trials that…

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Positive Results from Part A of a Phase 3 Trial for Sickle Cell Disease

Positive Results from Part A of a Phase 3 Trial for Sickle Cell Disease

Sickle cell disease (SCD) is a blood disorder. SCD patients have abnormal hemoglobin, or sickle hemoglobin, caused by a genetic mutation in the beta-chain. It results in deformed and inflexible…

Continue Reading Positive Results from Part A of a Phase 3 Trial for Sickle Cell Disease
Potential Dravet Syndrome Treatment Shows Capability in Clinical Trial

Potential Dravet Syndrome Treatment Shows Capability in Clinical Trial

According to a story from pm360online.com, the pharmaceutical company Zogenix Inc. recently announced that its experimental drug candidate ZX008, also known as Fintepla®, has performed well in the company's latest…

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Paris Parents Start “Kisses for Leo” Campaign for son With Rare Infantile Neuroaxonal Dystrophy

Paris Parents Start “Kisses for Leo” Campaign for son With Rare Infantile Neuroaxonal Dystrophy

  When Deborah, a New Yorker, flew over to Paris to do an internship for an architecture office, she never knew she would be flying across the world and meeting…

Continue Reading Paris Parents Start “Kisses for Leo” Campaign for son With Rare Infantile Neuroaxonal Dystrophy
Just How Helpful is Making a Wish Come True for Children With Life Threatening Illnesses?

Just How Helpful is Making a Wish Come True for Children With Life Threatening Illnesses?

  Tiffany Rowe was 15 when she accomplished her biggest childhood dream. She met Michael Jackson at a live concert and actually got to dance on stage with him. Over…

Continue Reading Just How Helpful is Making a Wish Come True for Children With Life Threatening Illnesses?
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Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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