Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

1459 Search Results Found

You searched for: "study of the week"
  1. Home>
  2. Search results for “study of the week”>
  3. Page 170
New Treatment in Development for Mastocytosis

New Treatment in Development for Mastocytosis

Many cancer and blood specialists will not have encountered systemic mastocytosis. A new drug targets the underlying defect of the disease and will help put doctors on the lookout. Keep…

Continue Reading New Treatment in Development for Mastocytosis
Ministry of Health Focuses on Creating Funds for Families with Rare Diseases in Singapore

Ministry of Health Focuses on Creating Funds for Families with Rare Diseases in Singapore

Out-of-pocket expenses for rare disease are astronomical, and the Ministry of Health (MOH), is taking time to find a more positive way to help benefit children and their families burdened…

Continue Reading Ministry of Health Focuses on Creating Funds for Families with Rare Diseases in Singapore
Reovirus: An Unlikely Ally in the Battle Against Brain Cancer

Reovirus: An Unlikely Ally in the Battle Against Brain Cancer

Scientists in the UK are hopeful that they have discovered a new tool in the battle against brain cancer. The surprising solution is a virus. Ten patients in the UK…

Continue Reading Reovirus: An Unlikely Ally in the Battle Against Brain Cancer
Editor’s Choice: Treatment Wishes Really Do Come True

Editor’s Choice: Treatment Wishes Really Do Come True

TGIF, Patient Worthians! This week, kids went to bed wearing inside out pajamas and wishing for snow. Their wishes came true-- and so did the wishes of many rare disease…

Continue Reading Editor’s Choice: Treatment Wishes Really Do Come True
Anti-Psychotic Drug Could Prolong The Lives of Amyotrophic Lateral Sclerosis Patients

Anti-Psychotic Drug Could Prolong The Lives of Amyotrophic Lateral Sclerosis Patients

According an article from CityNews Toronto, an anti-psychotic medication is undergoing clinical trials in the treating of amyotrophic lateral sclerosis. In other studies, the treatment has shown to help slow…

Continue Reading Anti-Psychotic Drug Could Prolong The Lives of Amyotrophic Lateral Sclerosis Patients
Midatech Pharma Gets Verbal Approval For MTD201 Continued Development

Midatech Pharma Gets Verbal Approval For MTD201 Continued Development

Midatech Pharma just received verbal confirmation from Polish regulators to conduct the first European in-human study for a treatment that could potential aid those with carcinoid cancer and acromegaly, reported…

Continue Reading Midatech Pharma Gets Verbal Approval For MTD201 Continued Development
New Imaging Technology Improves Detection of Ovarian Cancer

New Imaging Technology Improves Detection of Ovarian Cancer

New research is being conducted to develop new technologies to detect ovarian cancer. Keep reading or follow the original story here to learn more about the struggles and developments involved…

Continue Reading New Imaging Technology Improves Detection of Ovarian Cancer
The Results of This New Trial Could Be Good News For Hemophilia Patients

The Results of This New Trial Could Be Good News For Hemophilia Patients

According to a story from the National Hemophilia Foundation, the Swedish pharmaceutical company Orphan Biovitrum announced that its first patient was registered for a new phase 4 clinical trial. The…

Continue Reading The Results of This New Trial Could Be Good News For Hemophilia Patients
  • Go to the previous page
  • 1
  • …
  • 167
  • 168
  • 169
  • 170
  • 171
  • 172
  • 173
  • …
  • 183
  • Go to the next page

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info