Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

1459 Search Results Found

You searched for: "study of the week"
  1. Home>
  2. Search results for “study of the week”>
  3. Page 172
What You Need To Know About Commensals and APS

What You Need To Know About Commensals and APS

Our gut bacteria may be responsible for antiphospholipid syndrome (APS). What do you need to know about the ordinary gut bacteria known as commensals, and APS? Keep reading, or view…

Continue Reading What You Need To Know About Commensals and APS
Good News for MPS VII Patients! FDA Approves New Treatment

Good News for MPS VII Patients! FDA Approves New Treatment

Good news for patients with Mucopolysaccharidosis Type VII (MPS VII)! In mid-November, the FDA approved a new drug for treatment of this rare disorder. The drug can be used for…

Continue Reading Good News for MPS VII Patients! FDA Approves New Treatment
Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM

Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM

Epidermolysis bullosa (EB) is a rare disorder, in which a genetic mutation disrupts the production of a protein that holds the skin together. This creates intense and painful blistering externally,…

Continue Reading Osteoarthritis Medicine May Offer Hope for Butterfly Children with EBS-DM
After Two Decades, FDA Approves New Hemophilia Treatment

After Two Decades, FDA Approves New Hemophilia Treatment

Big news for those with hemophilia! On Thursday, the FDA approved Hemlibra (manufactured by Genentech), a weekly self-injection for hemophilia A patients who have developed resistance to standard medicines for preventing…

Continue Reading After Two Decades, FDA Approves New Hemophilia Treatment
Breakthrough Stem Cell Transplant Successfully Treats Bronchopulmonary Dysplasia (BPD)

Breakthrough Stem Cell Transplant Successfully Treats Bronchopulmonary Dysplasia (BPD)

Vinmec, a healthcare facility in Vietnam made bronchopulmonary dysplasia (BPD) history. They successfully treated BDP using a method that had never been tried before: the stem cell transplant. The procedure occurred…

Continue Reading Breakthrough Stem Cell Transplant Successfully Treats Bronchopulmonary Dysplasia (BPD)
Get Tested for Zika Not Once, But Twice

Get Tested for Zika Not Once, But Twice

According to a new study, getting tested for Zika once is not enough. A second procedure may be needed to avoid giving birth to a child with defects. We all…

Continue Reading Get Tested for Zika Not Once, But Twice
If You Have Myasthenia Gravis, Your Flu Shot Matters More Than You Might Think

If You Have Myasthenia Gravis, Your Flu Shot Matters More Than You Might Think

First, I want to address everyone, whether or not you have myasthenia gravis. If you're able to get the flu vaccine, but haven't yet, you should get on that as…

Continue Reading If You Have Myasthenia Gravis, Your Flu Shot Matters More Than You Might Think
Do You Know Which Foods Aggravate Psoriasis?

Do You Know Which Foods Aggravate Psoriasis?

If you have psoriasis, you're familiar with the itchy, red patches of skin. The patches can show up anywhere. Typically, they're found on elbows, ankles, knees, and scalps. They might…

Continue Reading Do You Know Which Foods Aggravate Psoriasis?
  • Go to the previous page
  • 1
  • …
  • 169
  • 170
  • 171
  • 172
  • 173
  • 174
  • 175
  • …
  • 183
  • Go to the next page

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info