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Rare Community Profiles: Study Investigator Dr. Weyand Discusses the Trial Data that Led to ALTUVIIIO Approval for Hemophilia A

Rare Community Profiles: Study Investigator Dr. Weyand Discusses the Trial Data that Led to ALTUVIIIO Approval for Hemophilia A

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Continue Reading Rare Community Profiles: Study Investigator Dr. Weyand Discusses the Trial Data that Led to ALTUVIIIO Approval for Hemophilia A
Phase 2a Study on ‘1104 in Allergic Disease Now Complete

Phase 2a Study on ‘1104 in Allergic Disease Now Complete

  Revolo Biotherapeutics was founded with one specific goal in mind: to benefit people living with autoimmune and allergic diseases by creating novel, life-changing therapeutics that induce long-term remission. They…

Continue Reading Phase 2a Study on ‘1104 in Allergic Disease Now Complete
Xeljanz Shows Efficacy for Polymyalgia Rheumatica, Study Shows

Xeljanz Shows Efficacy for Polymyalgia Rheumatica, Study Shows

The goal of polymyalgia rheumatica treatment is to reduce inflammation and control or manage the other symptoms. As such, the current standard-of-care includes long-term corticosteroid treatment. According to MedPage Today,…

Continue Reading Xeljanz Shows Efficacy for Polymyalgia Rheumatica, Study Shows
First Patient Dosed in Descartes-08 Study for gMG

First Patient Dosed in Descartes-08 Study for gMG

  In a recent news release from biotechnology company Cartesian Therapeutics, the company shared that the first patient was dosed in a Phase 2b study evaluating Descartes-08 for generalized myasthenia…

Continue Reading First Patient Dosed in Descartes-08 Study for gMG
Netherton Syndrome: The Second Clinical Study Has Been FDA Approved to Begin Testing For This Rare Skin Disease

Netherton Syndrome: The Second Clinical Study Has Been FDA Approved to Begin Testing For This Rare Skin Disease

Michael Myers, M.D., CEO of the Quoin pharmaceutical company describes Netherton Syndrome as a devastating skin disorder that at times may be fatal. In a recent article published in BioSpace,…

Continue Reading Netherton Syndrome: The Second Clinical Study Has Been FDA Approved to Begin Testing For This Rare Skin Disease
Study: One Wet Age-Related Macular Degeneration Drug Appears Superior to the Other

Study: One Wet Age-Related Macular Degeneration Drug Appears Superior to the Other

According to a story from hopkinsmedicine.org, a study evaluating data from 106 patients living with wet age-related macular degeneration found a significant disparity in outcomes when comparing patients that received…

Continue Reading Study: One Wet Age-Related Macular Degeneration Drug Appears Superior to the Other
INTERVIEW: Albireo’s CEO Ron Cooper Talks Patient-Centricity, PFIC, and Study Updates

INTERVIEW: Albireo’s CEO Ron Cooper Talks Patient-Centricity, PFIC, and Study Updates

Each week, in an email to his team, Albireo Pharma CEO Ron Cooper sends out the story of a child or family affected by conditions such as PFIC or Alagille…

Continue Reading INTERVIEW: Albireo’s CEO Ron Cooper Talks Patient-Centricity, PFIC, and Study Updates
A Phase 3 Study is Being Designed to Evaluate Vurolenatide for Short Bowel Syndrome

A Phase 3 Study is Being Designed to Evaluate Vurolenatide for Short Bowel Syndrome

  Clinical trials are a crucial part of learning more about certain diseases, as well as better understanding the impact of various therapeutic options. For example, a clinical trial can…

Continue Reading A Phase 3 Study is Being Designed to Evaluate Vurolenatide for Short Bowel Syndrome
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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