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The Center for Information & Study on Clinical Research Participation’s Clinical Trials Day 2018

International Clinical Trials Day  #ClinicalTrialsDay #BecomeAWARE May 20th, 2018 International Clinical Trials Day is celebrated every year on May 20th. Communities use the day to remember the efforts of study volunteers…

Continue Reading The Center for Information & Study on Clinical Research Participation’s Clinical Trials Day 2018
Celebrate National Infant Immunization Week With a Little Research!

Celebrate National Infant Immunization Week With a Little Research!

This week is National Infant Immunization Week! For many of us, it was an anxiety-riddled memory of getting a ton of shots at the doctor's office when we were younger. And…

Continue Reading Celebrate National Infant Immunization Week With a Little Research!
New Study Seeks to Test Treatment Method for Rare Childhood Brain Cancer

New Study Seeks to Test Treatment Method for Rare Childhood Brain Cancer

Many cancers employ a sort of genetic smoke screen that allows them to hide from the body’s immune system. One variety of immunotherapy, however, may be able to clear the…

Continue Reading New Study Seeks to Test Treatment Method for Rare Childhood Brain Cancer
A New Study With CyberKnife Technology Shows Promise For Treating Trigeminal Neuralgia

A New Study With CyberKnife Technology Shows Promise For Treating Trigeminal Neuralgia

According to a recent article from BioSpace, a study of Accuray's CyberKnife radiosurgical system showed good results with the new technology. The CyberKnife system projects radiation beams from multiple angles…

Continue Reading A New Study With CyberKnife Technology Shows Promise For Treating Trigeminal Neuralgia
Robotic Implants Helped Stimulate Organ Tissue Growth in a New Study

Robotic Implants Helped Stimulate Organ Tissue Growth in a New Study

According to an article from rdmag.com, a new form of treatment could allow for organ tissue to regrow to a normal level in patients with conditions in which organs are…

Continue Reading Robotic Implants Helped Stimulate Organ Tissue Growth in a New Study
Study Shows Endurance Training Helps Patients With Huntington’s Disease

Study Shows Endurance Training Helps Patients With Huntington’s Disease

While it's general knowledge that working out is a huge plus for a healthy life, many questioned whether it was positive or dangerous to individuals with rare diseases. Yet, BMC…

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Recent Study Results Reveal New Possibilities in Treating Paroxysmal Nocturnal Hemoglobinuria (PNH)

Recent Study Results Reveal New Possibilities in Treating Paroxysmal Nocturnal Hemoglobinuria (PNH)

On December 11, Alexion Pharmaceuticals, Inc. released dose-ranging data from a recent clinical study involving treatment with ALXN1210, which is an investigational long-acting C5 complement inhibitor meant to treat sufferers…

Continue Reading Recent Study Results Reveal New Possibilities in Treating Paroxysmal Nocturnal Hemoglobinuria (PNH)
Early Study on Drug Shows Great Success in Treating C3 Glomerulopathy

Early Study on Drug Shows Great Success in Treating C3 Glomerulopathy

A major first step for a viable treatment option! Achillion Pharmaceuticals last week reported preliminary proof-of-concept results from its ongoing Phase 2, study of a new treatment for C3 glomerulopathy…

Continue Reading Early Study on Drug Shows Great Success in Treating C3 Glomerulopathy
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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