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ICYMI: Positive Topline Data Available on Vimseltinib for TGCT

ICYMI: Positive Topline Data Available on Vimseltinib for TGCT

  Surgical resection remains the most common treatment approach for people living with tenosynovial giant cell tumors (TGCT). Unfortunately, surgery is not always an appropriate treatment option for all people.…

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When to Consider Exploring Clinical Trials with a Rare Diagnosis

When to Consider Exploring Clinical Trials with a Rare Diagnosis

Written by Maria Palombini Answer: at the time of diagnosis, it should be one of the first actions you, the patient and/or caregiver, should take. Why? Receiving a diagnosis with…

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Alofisel for Complex Perianal Fistulas (CPF) Falls Short in Phase 3 Trial

Alofisel for Complex Perianal Fistulas (CPF) Falls Short in Phase 3 Trial

  When drugs enter into clinical studies, both patients and drug developers alike hope for success. These therapies could transform the treatment sphere, especially in disease states with limited or…

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The Impact and Challenges of Caring for People with Tardive Dyskinesia 

The Impact and Challenges of Caring for People with Tardive Dyskinesia 

When it comes to caregiving for a family member, loved one, or other individual living with any type of health issue, there is an enormous financial, emotional, and mental burden…

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Which Treatment Leads to Better UC Clinical Responses: Upadacitinib or Ustekinumab?

Which Treatment Leads to Better UC Clinical Responses: Upadacitinib or Ustekinumab?

During the ACG Annual Scientific Meeting, which took place this year from October 20 through 25, one presenter shared insights into a multicenter retrospective cohort study which explored the efficacy…

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A Mother Raises NF1 Awareness After Son’s Diagnosis

Editor's Note: We believe that patients are a key part of developing and leading the conversation in disease communities. Patient Worthy sometimes partners with reputable agencies that wish to speak…

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Vamorolone Has Been FDA Approved to Treat Duchenne Muscular Dystrophy

Vamorolone Has Been FDA Approved to Treat Duchenne Muscular Dystrophy

Vamorolone, now marketed as AGAMREE®, is termed a dissociative steroid therapy, as it has proven its potential to retain the muscle-strengthening and anti-inflammatory benefits of corticosteroids. On the other side…

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Promising Interim Data in Phase 1/2 Hunter Syndrome Trial

Promising Interim Data in Phase 1/2 Hunter Syndrome Trial

Professionals from all corners of the world convene at SSIEM each year to discuss the latest groundbreaking discoveries. According to a report in BioSpace, one such breakthrough was presented by…

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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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