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Audrey’s Story: Myasthenia Gravis (MG) Does Not Define Me

Audrey’s Story: Myasthenia Gravis (MG) Does Not Define Me

Written by Audrey Getman September 25, 2020: The day I was diagnosed with myasthenia gravis (MG). One month prior: I was in the emergency room (ER) after experiencing a worsening…

Continue Reading Audrey’s Story: Myasthenia Gravis (MG) Does Not Define Me
An Unexpected Liver Transplant – Part Two

An Unexpected Liver Transplant – Part Two

Written by Bill Clark Part 2 - Our Journey from Liver Failure to Transplant Continued from Part 1 “A new liver.” That was Becky’s answer pretty much every morning from…

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Alzheimer’s: Researchers at Japan’s Riken Center Discover a New Treatment to Alleviate Symptoms and Improve Memory

Alzheimer’s: Researchers at Japan’s Riken Center Discover a New Treatment to Alleviate Symptoms and Improve Memory

The Riken Center team, headed by Dr. Takaomi Saido and using mice with Alzheimer’s, discovered that dopamine may lessen the brain’s physical symptoms and improve memory. The study, featured in…

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An Unexpected Liver Transplant – Part One

An Unexpected Liver Transplant – Part One

Written by Bill Clark Part 1 - Our Journey from Fatty Liver to Liver Failure Becky's fight is our fight. That became my "rallying cry” early on when my wife…

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The Importance of Staying Active with Pompe Disease

The Importance of Staying Active with Pompe Disease

Written by Vanessa O'Connell Hello, my name is Vanessa, and I am living with late onset Pompe disease, also known as glycogen storage disease type II and acid maltase deficiency.…

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Even as a Nurse, I Wasn’t Prepared for Life with Early Alzheimer’s Disease

Even as a Nurse, I Wasn’t Prepared for Life with Early Alzheimer’s Disease

Written by Linda Shows Let me start with, I’m BLESSED even though I have Alzheimer’s disease (AD). I am a blessed wife, mother, daughter, sister, friend, dog mom, nurse and…

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Multifocal Motor Neuropathy Trial to Proceed Following FDA Clearance

Multifocal Motor Neuropathy Trial to Proceed Following FDA Clearance

According to a story from BioSpace, the biotech company Dianthus Therapeutics recently announced that the US Food and Drug Administration (FDA) has cleared the company's phase 2 clinical trial. This…

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Proof-of-Concept Trial Suggests That Tezepelumab (TEZSPIRE) Could Play a Role in Treating COPD

Proof-of-Concept Trial Suggests That Tezepelumab (TEZSPIRE) Could Play a Role in Treating COPD

The COURSE Phase IIa clinical trial was conducted to evaluate tezepelumab (marketed as TEZSPIRE) in people living with chronic obstructive pulmonary disease (COPD) that had a wide range of blood…

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The Mentor She Wished She Had - How Elizabeth Became a Lifeline for EB
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
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