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Compassion Corner: Myths Surrounding Compassionate Care During the Pandemic

Compassion Corner: Myths Surrounding Compassionate Care During the Pandemic

Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

Continue Reading Compassion Corner: Myths Surrounding Compassionate Care During the Pandemic
New Therapy for Eosinophilic Granulomatosis with Polyangiitis May be Coming to Europe

New Therapy for Eosinophilic Granulomatosis with Polyangiitis May be Coming to Europe

The EMA has recently published their recommendation for extending the indication of a treatment called Nucala to include patients diagnosed with relapsing-remitting or refractory eosinophilic granulomatosis with polyangiitis (EGPA). Specifically,…

Continue Reading New Therapy for Eosinophilic Granulomatosis with Polyangiitis May be Coming to Europe
Clinical Trial of Vamorolone Receives Orphan Grant Funding

Clinical Trial of Vamorolone Receives Orphan Grant Funding

Funding for clinical trials can be an issue, especially for rare disease studies. Luckily, there are programs that exist to help with the financials, such as the "Clinical Studies of…

Continue Reading Clinical Trial of Vamorolone Receives Orphan Grant Funding
PTC-AADC Shows Benefits for Patients with AADC Deficiency, Data Shows

PTC-AADC Shows Benefits for Patients with AADC Deficiency, Data Shows

Recently, biopharmaceutical company PTC Therapeutics, Inc. performed a five-year data analysis to evaluate the continued safety, efficacy, and tolerability of PTC-AADC. The company developed this novel gene therapy to improve…

Continue Reading PTC-AADC Shows Benefits for Patients with AADC Deficiency, Data Shows
CIMT Improves Mobility, Skills for Children with Cerebral Palsy

CIMT Improves Mobility, Skills for Children with Cerebral Palsy

The current standard-of-care for children with cerebral palsy often consists of a blend of occupational and physical therapy. But what if another therapy could be more beneficial? Medical XPress describes…

Continue Reading CIMT Improves Mobility, Skills for Children with Cerebral Palsy
Athletes with Long QT Syndrome Can Safely Return To Sports

Athletes with Long QT Syndrome Can Safely Return To Sports

Long QT syndrome (LQTS) is a rare condition that's characterized by fast and chaotic heartbeats. Episodes have the potential to cause fainting, seizures, or even death. Because of this, affected…

Continue Reading Athletes with Long QT Syndrome Can Safely Return To Sports
Valley Fever Prevalence Higher than Believed in Utah

Valley Fever Prevalence Higher than Believed in Utah

In the past, researchers believed that Valley Fever, a fungal disease caused by coccidioides fungus, was mostly found in the southwestern United States, as well as areas in Mexico and…

Continue Reading Valley Fever Prevalence Higher than Believed in Utah
The Doctor Mistakenly Examined An Eight-Year-Old X-ray; A Teenager Died Four Months Later

The Doctor Mistakenly Examined An Eight-Year-Old X-ray; A Teenager Died Four Months Later

Micah Gillings of Cambourne, Cambridgeshire was nineteen years old when he was diagnosed with an enlarged heart as evidenced in an X-ray taken in January 2020. An article appeared this…

Continue Reading The Doctor Mistakenly Examined An Eight-Year-Old X-ray; A Teenager Died Four Months Later
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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