Writers
Meet our Patient Worthy Contributors Ms. Stephanie ErnstTAPS Nerd and FounderA self-confessed TAPS Nerd,her passion is to deliver information about TAPS that is up to date and easy to understand. Stichting…
Meet our Patient Worthy Contributors Ms. Stephanie ErnstTAPS Nerd and FounderA self-confessed TAPS Nerd,her passion is to deliver information about TAPS that is up to date and easy to understand. Stichting…
Living with dystonia is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was king of Ephyra who was punished for chronic deceitfulness and condemned…
When my dystonia was severe, my neck was turned and locked towards my right shoulder. Most people would look and not say anything. Then there were some who looked and…
Living with chronic pain or other health conditions is, in many ways, an exercise in perpetual, involuntary mindfulness. For those of us navigating long-term conditions—like my own twenty‑five‑year journey with…
One of the hardest things about living with dystonia is trying to explain what it feels like on the inside. People often see (not always for some) the muscle contractions, the pulling, the tension…
Click here to see Part 1 of of this 3 part pain series. If you suffer with chronic pain, you not only live with the unrelenting sensation of pain, but probably…
After being diagnosed with a rare disease or any other chronic health condition (in my case I have dystonia) and learning it is not a temporary problem (or if you…
When we hear the word diet, most of us automatically think of food. But what about our thoughts? Let’s look at them in terms of consumption as well. According to…