The National Foundation for Ectodermal Dysplasias’ 2018 Family Conference

Post author:James Moore
Post published:July 6, 2018
Post category:

"Bridges to Inspiration" At the 2018 conference, families and patients affected by ectrodactyly-ectodermal dysplasia-cleft syndrome and other ectodermal dysplasias will be able to build community with each other, network, and…

Get Involved

Ready to get involved with Patient Worthy? Share your authentic story with others. Raise awareness and inspire change!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Get Involved

The National Foundation for Ectodermal Dysplasias’ 2018 Family Conference

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

Get Involved

Let’s Work Together!

Keep Up to Date

Learn More