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Lessons Learned as a 3rd-Generation Fabry Disease Patient

Lessons Learned as a 3rd-Generation Fabry Disease Patient

  • Post author:Patient Worthy Contributor
  • Post published:May 7, 2025
  • Post category:Fabry Disease

When asked about the emotions they felt when they were diagnosed, many members of the rare disease community recall a sense of loneliness. Many of us turn to advocacy group…

Continue Reading Lessons Learned as a 3rd-Generation Fabry Disease Patient
3000-Mile Trek Across US for Fabry Awareness
Source: www.pixabay.com

3000-Mile Trek Across US for Fabry Awareness

  • Post author:Al Pendleton
  • Post published:February 23, 2017
  • Post category:Fabry Disease/Rare Disease

One of my favorite scenes from Forrest Gump was the titular main character running across the United States. He got all kinds of press, as well as masses of people…

Continue Reading 3000-Mile Trek Across US for Fabry Awareness
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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