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Generalized Arterial Calcification of Infance-1 GACI

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Too Little Too Late: A Mom’s Plea for Improved GACI Screening

Too Little Too Late: A Mom’s Plea for Improved GACI Screening

  • Post author:Kathy Devanny
  • Post published:July 30, 2025
  • Post category:Generalized arterial calcification of infancy-1 (GACI1)

Acknowledgement: Patient Worthy is honored to share this story from our friends at GACI Global. To view the original article, please click here. Sharon’s passion for children shines in her…

Continue Reading Too Little Too Late: A Mom’s Plea for Improved GACI Screening
Liam’s Story – GACI Caregiver

Liam’s Story – GACI Caregiver

  • Post author:PW Collaborator
  • Post published:April 2, 2025
  • Post category:Generalized arterial calcification of infancy-1 (GACI1)

Patient Worthy is honored to present this story by way of the GACI Global. GACI Global is a nonprofit organization whose mission is to connect families affected by Generalized Arterial…

Continue Reading Liam’s Story – GACI Caregiver
Facing The Uncertainty of GACI – Sienna’s Story

Facing The Uncertainty of GACI – Sienna’s Story

  • Post author:PW Collaborator
  • Post published:March 17, 2025
  • Post category:Generalized arterial calcification of infancy-1 (GACI1)

Only about 50% of those born with GACI survive. Patient Worthy is grateful to GACIGlobal for the ability to share Sienna's Story.  GACI Global is a nonprofit organization whose mission…

Continue Reading Facing The Uncertainty of GACI – Sienna’s Story
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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