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    The First International Acromegaly Conference in Honor of Acromegaly Awareness Day

    It is Patient Worthy’s pleasure to report on the first International Acromegaly conference which brought together acromegaly support groups from East and West Canada,- The Vancouver and Atlantic Acromegaly support…

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    Challenges and Benefits: A Family’s Experience at the Myotonic Dystrophy Consortium
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    Challenges and Benefits: A Family’s Experience at the Myotonic Dystrophy Consortium

    The International Myotonic Dystrophy Consortium was held in San Francisco last month and while Patient Worthy was not there in person we were fortunate to have a family reporting from the…

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    National Hemophilia Foundation’s 69th Annual Meeting Wrap-Up!
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    National Hemophilia Foundation’s 69th Annual Meeting Wrap-Up!

    Patient Worthy attended the National Hemophilia Foundation's 69th Annual meeting in Chicago and we are thrilled to report on some of the exciting new developments for patients with bleeding disorders.…

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    Two Important Events if You or Someone You Love has Amyloidosis

    1. On Thursday, June 1st at 12 pm EST, 11 am central, there will be a seminar by the Amyloidosis Foundation to better understand this complex disease. It will be narrated by two physicians from…

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    Upcoming IDF Session on CGD!
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    Upcoming IDF Session on CGD!

    A special session on CGD will be presented at the 2017 IDF National conference. CGD is a primary immunodeficieny disease and is characterized by skin infections, both fungal and bacterial,…

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    2017 International Vasculitis Symposium
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    2017 International Vasculitis Symposium

    Do you have VASCULITIS? Associated with: Behcet’s Disease, Churg Strauss Syndrome, Cryoglobulinemia, Giant Cell Arteritis (Temporal Arteritis), Granulomatosis with Polyangiitis (formerly Wegener’s Granulomatosis), Hpersensitivity Vasculitis (Leukocytoclastic), IgA Vasculitis (Henoch-Schönlein Purpura), Kawasaki…

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    2017 Muscular Dystrophy Association Scientific Conference: A Beacon of Light!
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    2017 Muscular Dystrophy Association Scientific Conference: A Beacon of Light!

    2017 Muscular Dystrophy Association Scientific Conference was a beacon of light! Researchers from academic medical centers,  pharmaceutical companies, children’s’ medical centers, biotech, engineering,  and veterinary medicine came together to share…

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