Batten Disease Support & Research Association (BDSRA) 2017 Family Conference

• Post author:Patient Worthy Contributor
• Post published:July 6, 2017
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Register for the event here.

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Lysosomal Disease Network’s 4th International Glycogen Storage Disease Conference

• Post author:Patient Worthy Contributor
• Post published:June 15, 2017
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IGSD2017

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Canadian Association of Pompe’s 2017 Conference

• Post author:Patient Worthy Contributor
• Post published:June 10, 2017
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Lysosomal Disease Network 4TH Annual Million Dollar Bike Ride

• Post author:Patient Worthy Contributor
• Post published:May 20, 2017
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For more information, click here, call 215-573-6822, or e-mail Million Dollar Ride.

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Fabry International Network’s 5th Fabry Expert Meeting

• Post author:Patient Worthy Contributor
• Post published:May 19, 2017
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For more information, e-mail Toni or call +44 (0) 0345 389 9901 in the United Kingdom.

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University of Rochester’s Center for Human Experimental Therapeutics’ Technology & Rare Neurological Diseases Symposium

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• Post published:May 12, 2017
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