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Red Fred Project

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Red Fred Project: Helping Chronically Ill Child Authors Publish Their First Books
White77 / Pixabay

Red Fred Project: Helping Chronically Ill Child Authors Publish Their First Books

  • Post author:Scott Carlson
  • Post published:May 6, 2019
  • Post category:Rare Disease

Much of what we think counts as "treatment" in medical literature is informed by the amazing successes of high-tech drugs and therapies that have evolved in just the past few…

Continue Reading Red Fred Project: Helping Chronically Ill Child Authors Publish Their First Books
The Children’s Book by a Girl Who Aged Too Fast
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The Children’s Book by a Girl Who Aged Too Fast

  • Post author:Patient Worthy Contributor
  • Post published:November 9, 2017
  • Post category:Progeria

Meghan Waldron, a 16-year-old girl in Massachusetts, disregards comments about her size, “Sure I’m small, but so are poison dart frogs!” Meghan runs track and country, plays violin and cello,…

Continue Reading The Children’s Book by a Girl Who Aged Too Fast
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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