Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
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Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS

This patient story was contributed by the Marfan Foundation. ### CONTENT WARNING: This patient story focuses on a detailed account of fatal childhood aortic dissection. It is shared to save…

Continue Reading Natalie’s Legacy: Saving Other Families from Aortic Dissection Loss Due to Undiagnosed VEDS
ICYMI: EDSIVO for vEDS Earns Breakthrough Therapy Designation
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ICYMI: EDSIVO for vEDS Earns Breakthrough Therapy Designation

In the United States, the FDA grants Breakthrough Therapy designation to drugs intended to treat serious and life-threatening illnesses, and/or drugs which show significant improvement over available therapies. After receiving…

Continue Reading ICYMI: EDSIVO for vEDS Earns Breakthrough Therapy Designation