Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

    Researchers Unearth Potential Therapy for FBXL4 Mitochondrial Disease
    Source: Pixabay

    Researchers Unearth Potential Therapy for FBXL4 Mitochondrial Disease

    FBXL4-related mitochondrial disease urgently requires new therapies. Unfortunately, this condition is often fatal by early ages (early to mid-childhood). Therefore, it is important to spur research into potential interventions or…

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    Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 2)
    Dr. Evan Dellon

    Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 2)

    Before you read on, make sure you've checked out Part 1 of our interview, where we discussed what eosinophilic esophagitis is, its symptoms and diagnostic criteria, and why Dr. Dellon chose to…

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    Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 1)
    Dr. Evan Dellon

    Expanding Eosinophilic Esophagitis Research: An Interview with Dr. Evan Dellon (Pt. 1)

    The U.S. Food and Drug Administration (FDA) approved Dupixent for the treatment of moderate-to-severe atopic dermatitis in patients aged 6 months+; the drug is also approved as add-on maintenance therapy…

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    September is Desmoid Tumor Awareness Month: Sharing Amy and Jeanne’s Stories (Pt. 1)

    It is incredibly important to raise awareness of rare and underserved conditions; this increased awareness not only helps to spread the stories of those affected, but to garner support, connect…

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