Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

    Is There Too Much Variability in Hyperkalemia Management?
    Photo by Robina Weermeijer on Unsplash

    Is There Too Much Variability in Hyperkalemia Management?

      The virtually-held National Kidney Foundation 2020 Spring Clinical Meetings explored various topics relating to nephrological conditions, treatment, and patient outcomes. One presentation, spearheaded by Dr. Adam Weinstein, MD, and…

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    Scientists Explore the Epigenetic Causes of PAH
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    Scientists Explore the Epigenetic Causes of PAH

      Recently, researchers from European Molecular Biology Laboratory (EMBL) looked to understand the cause of pulmonary arterial hypertension (PAH). They collaborated with Stanford University through the Life Sciences Alliance. Because…

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    C4 Genes as a Double-Edged Sword: Sex-Based Differences in Lupus, Schizophrenia, and Sjögren’s Syndrome
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    C4 Genes as a Double-Edged Sword: Sex-Based Differences in Lupus, Schizophrenia, and Sjögren’s Syndrome

      Women can do anything that men can do, and vice versa. Well, while that sentiment may be true in our everyday life, it isn't quite true on a genetic…

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    A New and Beneficial Tactic for People with Multiple Sclerosis? Mindfulness Training
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    A New and Beneficial Tactic for People with Multiple Sclerosis? Mindfulness Training

    Being at peace with ourselves and our lives makes daily living so much easier. Of course, sometimes it's easier said than done. But one tactic may help improve comfort, confidence,…

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    New Clinical Expectations Needed to Treat Hemophilia
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    New Clinical Expectations Needed to Treat Hemophilia

    The medical realm is changing - but how does that impact patient care and clinical expectations? The National Hemophilia Foundation discusses how clinical expectations for patients with hemophilia don't necessarily…

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    A SF3B1 Mutation May Cause A New Subset of Myelodysplastic Syndromes
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    A SF3B1 Mutation May Cause A New Subset of Myelodysplastic Syndromes

    Genetic research is a burgeoning and exciting field. With the discovery of new genetic mutations and variants comes a deeper understanding of rare diseases and their subtypes. According to Cancer…

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    How Rare Disease Biotech “Cure Rare Disease” Is Handling COVID-19
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    How Rare Disease Biotech “Cure Rare Disease” Is Handling COVID-19

    From social distancing and shuttered businesses to personal health concerns, COVID-19 has changed daily life for the foreseeable future. There are nearly 4.75 million diagnoses worldwide, with 1.53 million in…

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    Gilead Donates 940,000 Remdesivir Doses
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    Gilead Donates 940,000 Remdesivir Doses

    Multiple biotechnology and pharmaceutical companies have joined in the fight against COVID-19. But one, Gilead Sciences, has been at the forefront of both progress and controversy. The company developed remdesivir,…

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    A Negative Side Effect of COVID-19: Reduced Cancer Screenings
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    A Negative Side Effect of COVID-19: Reduced Cancer Screenings

    In her early 20's, Mackenzie Alleman lost her mother to breast cancer. Then, at 28, she herself underwent a preventative double mastectomy after learning that she carried the mutated BRCA1 gene.…

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    Exploring the Similar Pathology “Genetic Doppelgängers” ALS and SCA36
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    Exploring the Similar Pathology “Genetic Doppelgängers” ALS and SCA36

    Recently, scientists from Emory University set out to discover whether there was any pathological link between spinocerebellar ataxia type 36 (SCA36) and amyotrophic lateral sclerosis and frontotemporal dementia (ALS/FTD). Both…

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    Former UFC Athlete Joe Ellenberger’s Toughest Opponent: Paroxysmal Nocturnal Hemoglobinuria

    The UFC has some tough fighters in it. But 35-year-old Joe Ellenberger never thought that his most difficult opponent would be within himself. That is, his paroxysmal nocturnal hemoglobinuria (PNH),…

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    Retevmo Approved for Treatment of Genetically-Mutated Lung and Thyroid Cancers
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    Retevmo Approved for Treatment of Genetically-Mutated Lung and Thyroid Cancers

    A recent BioSpace press release shares some exciting news for patients with non-small cell lung cancer, medullary thyroid cancer, and other thyroid cancers caused by RET gene mutations. Retevmo (selpercatinib) is the…

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    A Friend Taught Her About Her Antiphospholipid Syndrome: Why the Medical Field Needs to Do Better
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    A Friend Taught Her About Her Antiphospholipid Syndrome: Why the Medical Field Needs to Do Better

    Ali Hardy struggled with her health for a long time. In an article for The Mighty, Ali, an actress in New York City, explains that she was never able to…

    Continue Reading A Friend Taught Her About Her Antiphospholipid Syndrome: Why the Medical Field Needs to Do Better
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