Invisible Illness – Documentary Screening in Orange, CA
I wanted to invite the invisibly disabled community to join the screening of ‘We Are Visible’, my film about people living with an invisible condition (Ehlers-Danlos syndrome) all around the…
Scholarships are Available for the 2019 International Pain Summit Which Will be Held in LA this November
IPain The International Pain Foundation (IPain) is a nonprofit organization dedicated to supporting those with chronic pain due to neurological, musculoskeletal, inflammatory, degenerative, and emotional conditions. They aim to improve…
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GoFundMe for Sara Geurts, Model with Ehlers-Danlos Bedridden After New Diagnosis
According to a publication from People, Sara Geurts, a 28-year-old model with Ehlers-Danlos syndrome, has been bedridden for several weeks due to complications linked to her condition. Geurts, a Minneapolis…
Drag Queen on RuPaul’s Drag Race Television Show Talks About Ehlers-Danlos Syndrome
Any fans of RuPaul Drag Race or the art of drag itself? Raise your manicured hand! Well, regardless of your answer - watch how the world of drag and rare…
Good News for Ehlers Danlos Syndrome Patients: First Ever Cannabis Clinic Opened in the UK
In November of 2018, England announced that cannabis could be prescribed for medicinal use by specialist physicians when no other treatments proved effective. It's prescription was purely to be decided…
Teddy Bears with Feeding Tubes help Children with Ehlers-Danlos Syndrome Adjust
Ehlers-Danlos Syndrome Ehlers-Danlos syndrome (EDS) refers to a group of rare disorders which affect the connective tissues in the blood vessels, bones, skin, and other organs in the body. It's caused…
