1. Rare diseases tend to come with long, difficult names. For the many people who are unfamiliar with them, they can be a mouthful and you may have to repeat yourself more than once. “I said ANKY-LOSING SPONDY-LITIS.”

2. If you have a rare condition chances are the treatment is pricey.

3. Not only is your medication expensive, there can sometimes be A LOT of it. Or ( lucky you) there is also medicine you take in order to treat the side effects of the first one.

4. You may grow familiar with confused medical practitioners, multiple tests, and way too many needles.

5. Overall, rare conditions can make your life a little complicated.
