On Tuesday September 15th, several members of the Patient Worthy team were attending the Annual Rare Disease Scientific Workshop hosted by the EveryLife Foundation for Rare Diseases. The topic this…
This Meme Monday here are some funny and encouraging memes to share with your friends and family, no matter the rare condition. All that we ask is when you share…
Living with a serious illness affects more than one's physical health; mental health often suffers, too. Which is one reason Anna Barlow took note when she met Anna Sirieix. The…
Go on your average radio show website—when you check out the bios of your favorite hosts, putting a face to those funky fresh tones you listen to on your way…
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