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Daily Archives: September 29, 2015

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Meet Maria: Behind Closed Doors

Meet Maria: Behind Closed Doors

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Complex Regional Pain Syndrome/Rare Disease

I'm Maria; I'm a wife and mother, fashionista and shoe enthusiast.  Not all of my days are bad, but no one knows about the really bad days because I hide…

Continue Reading Meet Maria: Behind Closed Doors
Meet Melissa: The Selfless Baker

Meet Melissa: The Selfless Baker

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Rare Disease

Meet Melissa, a wife, mother and advocate. Patient Worthy interviewed Melissa about her #InvisibleIllness - gastroparesis. Almost two years ago, un-welcomed and without warning, gastroparesis enetered Melissa's life. “I was fine one day…

Continue Reading Meet Melissa: The Selfless Baker
Meet Oakley: A Little Boy with a Big Fight

Meet Oakley: A Little Boy with a Big Fight

  • Post author:Patient Worthy Contributor
  • Post published:September 29, 2015
  • Post category:Rare Disease

This is my son Oakley, a five year old with  an adorable smile, who loves the Ninja Turtles, and you'd never guess what we've been through. My little man has…

Continue Reading Meet Oakley: A Little Boy with a Big Fight

Featured


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Metastatic Breast Cancer: Navigating Grief


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Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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