Giving Back: A Patient Story
It was a spring day in 2001. My wife Gina was asked if she wanted to go for a quick ride on our friends new motorcycle. It would change our…
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Patients With Long Term Pain Feel Stuck in the Middle of the Opioid Debate
According to a story from Kaiser Health News, many patients that are dealing with chronic pain feel stuck in the debate over opioids in the US. As the ongoing crisis…
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A Girl From New Zealand Died From Complex Regional Pain Syndrome, and Her Family Wants Answers
According to a story from the Sydney Morning Herald, Hayley Wyatt appeared to be calling for her mother in her final moments, but there was nothing anyone in her family…
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New Guidelines Cite the Need for Better Support for Complex Regional Pain Syndrome Patients
According to a story from the Royal College of Physicians, the organization has chosen to release new guidelines regarding the treatment of patients with complex regional pain syndrome, a potentially…
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The First Patients Have Been Enrolled on a Phase 3 Clinical Trial Evaluating a Potential CRPS Treatment
The first patients have been enrolled in two clinical trials of the experimental drug neridronate. The trials are part of the company’s Phase 3 program to evaluate the effects of…
<a href="https://pixabay.com/users/esudroff/">esudroff</a> / Pixabay
Mother of a Boy With Complex Regional Pain Syndrome Starts Nonprofit
According to a story from biotechprism.com, ten-year-old boy Jed Kagan of South Africa was crippled by debilitating pain when he first appeared at the Red Cross War Memorial Children's Hospital in…
How the CDC Opioid Guidelines Might Affect You if You Have Chronic Pain
Whenever it comes to a controversial issue, I always ask myself: Who benefits? In most cases, it’s not all that hard to figure it out. But sometimes, it seems like…
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Loveable Goofball Helps Make Rare Disease Life Bearable
I love coming home. Don’t get me wrong, I get a great deal of satisfaction from working a solid day, but I really appreciate when I take the first steps…
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How a Positive Attitude Defeats Chronic Regional Pain Syndrome
A little pain usually is a good thing. It's our alarm system. It's our body's way of saying, "Hey, that's hot... Get away before it hurts you!" However, when the…
Editor’s Choice: CRPS Life, Diagnosis Grief, and Cancer Wars
Happy Friday Patient Worthians! This week we have two awesome contributions. One addresses grieving as a parent of a child with rare disease. Another addresses living with CRPS and other…
How I Am Still Breathing
I felt the cold sweat racing down my back. I felt like I was drowning, but there was no water around. By this point in my life, I had experienced…
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This CRPS Debate Will Outrage You
No matter how mentally flexible or strong you are, we all have a breaking point. Unfortunately, many of us tend to push ourselves as far as possible until we reach…
Bravery in the Face of Pain: How One Woman Faces Down CRPS
Sudden. Intense. Pain. It feels like a burning sensation. Your toes, or your fingers, or your knees feel engulfed in flames. There is pressure, and there is pain. Where did…
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Dads for the Win! A CRPS Caregiver Fights Back
Sometimes… just sometimes, dads get a bad rap. Think about all the mommy blogs out there to empower, to share, and even at times, to vent about the life and…
Esta es la razón por la que no debe criticar a Kylie Jenner por sus fotos en silla de ruedas con demasiada severidad
La Ignorancia: Falta de conocimiento, aprendizaje, o información. Descuidado: No tener preocupación o cuidado, no prestar atención. Al tratar de encontrar las palabras perfectas para describir el reciente accidente de…
Rare disease like CRPS might make you feel lost. Read these tips on how to find your way back.
Cómo volver si usted se ha perdido contra una enfermedad rara
Después de ser diagnosticado con una enfermedad rara, a menudo hay un sinfín de preguntas que siguen: ¿Qué voy a hacer? ¿Qué es esta enfermedad? ¿Es curable? Y la pregunta…
CRPS is a the most painful disease you've never heard of.
CRPS: La enfermedad más dolorosa que usted nunca ha conocido
¿Qué pasa si vives con dolor crónico todos los días - y no sólo pequeños dolores, pero dolor de nivel 8 en una escala de 1 a 10? Kirah DeCarlo…
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Mujeres del mundo de las Enfermedades Raras: Es Hora de Hablar!
Este es el escenario: una mujer y un hombre entran a la sala de emergencia con los mismos síntomas. Ambos tienen un terrible dolor en la región abdominal. El hombre…
Editor’s Choice: Perseverance in the Face of Rare Disease
Happy Friday Patient Worthians! Do you wish you can take a day off from your rare disease? What about when it seems like it's getting to be too much and…
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Would You Trust This Craigslist Clinical Trial?
There’s a CRPS clinical trial being listed on Craigslist. Not kidding. You can check it out here. Now, am I the only one who finds that really odd? When I…
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Opioid Addiction Treatment Succeeds with Post-Treatment Support
If you suffer from complex regional pain syndrome, or CRPS, you know the value of effective pain management--because without it, life kind of grinds to a halt. Unfortunately, many of…
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Why Perseverance is the CRPS Secret Ingredient
Life can be overwhelming, especially when living with complex regional pain syndrome (CRPS). The continual pressure to look good, to perform well, and to compete for wealth and affection creates…
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The Honest Truth About Superheroes and CRPS
Has your physical therapist been suggesting standing like a superhero as a cortisol-lowering treatment for your complex regional pain syndrome (CRPS)? Well, s/he might just be slumping her or his…
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The Best 10 Resources Ever About Traveling with CRPS
Do you live with Complex Regional Pain Syndrome (CRPS)? Are you looking for inspiration from someone with experiences like yours? Well… Katelyn (Katie) O’Leary, a 27-year old Indiana native living…
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Insane (But True) Optimism for CRPS Spirits
Not everyone can appreciate a sarcastic sense of humor. And for whatever reason, this dry sense of humor usually comes with a warning. So this is yours. Please be advised…
