CysticLife.org, an online network for the cystic fibrosis (CF) community, is embarking on a historic fundraising effort to support community driven research in CF.
With your help, CysticLife and Mayo Clinic will be taking it a step further and identifying what exercise is best and how long it should be performed for maximum results!
This program will provide early research funds to answer key questions surrounding exercise for CF patients. Many CF patients have experienced amazing improvements in lung function with exercise, so CysticLife has partnered with researchers at Mayo Clinic to see if exercise can be an effective substitute for traditional airway clearance techniques.
The very therapies that keep cystic fibrosis patients alive take so much time that they are left with little time to enjoy life.
The treatment burden is heavy and honestly, to some, doesn’t always seem worth the sacrifice. Patients spend hours each day in treatment in order to maintain lung health. Those hours are spent sitting down, often alone, hooked up to a bulky vibrating vest and inhaling medications through a mouthpiece. Treatment time is isolating, uncomfortable, boring, and lonely. Unfortunately, the burden is growing as new medications have been added, taking additional time and greater sacrifice from patients.
The ultimate goal through this research is to improve the quality of life for CF patients by finding out if patients can use exercise as a treatment option. The CF community is small, but together we can make a lasting impact. I ask that you join me, Patient Worthy, and the CF community by making a donation to support this life-changing research.
This is a big undertaking, but one that is long overdue.
We are collaborating with some of the top CF researchers in the country to ensure that the research will be impactful, and the research is credible. It is time that patients and families have a voice in directing research that will actually benefit their lives today.
Like, share and donate today.
Help us raise awareness and funding for one of the first 100% grassroots patient driven research studies. To learn more about the Community Driven Research Fund visit https://unleashus.org/ and check back with us here at Patient Worthy for upcoming interviews and info.
