The Unusual Clinical Profile of Three Brothers With Cystic Fibrosis Warrants a New Look at Standard CF Care
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The Unusual Clinical Profile of Three Brothers With Cystic Fibrosis Warrants a New Look at Standard CF Care

  Science Direct recently published a Respiratory Medicine Case Report that may impact future Cystic Fibrosis (CF) treatment. The case involves adult brothers herein referred to for purposes of this…

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FRC Test Detects CF in Newborn Screening
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FRC Test Detects CF in Newborn Screening

Have you ever heard of newborn screening? Basically, newborn screening is a public health service which can identify potential hormone-related, genetic, or metabolic conditions. Since early identification is so crucial…

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UK Cystic Fibrosis Influencer Marc Cotterill Presents ‘Patient View’ Video at European Cystic Fibrosis Conference

Ahead of Cystic Fibrosis Week in the UK, 37-year-old Marc Cotterill, who lives with the disease, has given a video presentation to the European Cystic Fibrosis Conference on the theme…

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TRIKAFTA Approved for Pediatric Patients with F508del-Mutated Cystic Fibrosis
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TRIKAFTA Approved for Pediatric Patients with F508del-Mutated Cystic Fibrosis

In a news release from June 9, 2021, biotechnology company Vertex Pharmaceuticals, Inc. ("Vertex") shared that its therapy TRIKAFTA (elexacaftor/texacaftor/ivacaftor and ivacaftor) was approved for expanded use. Now, the treatment…

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CF Foundation Awards Over $2 Million for Cystic Fibrosis Treatment Development
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CF Foundation Awards Over $2 Million for Cystic Fibrosis Treatment Development

The Cystic Fibrosis Foundation is dedicated to finding a cure for the rare, genetic disorder. They fund more CF research than any other organization, and their latest effort is a…

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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)

Note: This guide was originally published on cysticfibrosis.com Written by Imogene The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the…

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