What do you do with 180 minutes? Think about it for just 1 minute…

Now, spend 1 more minute watching the video below.

For the some 30,000 people living with CF, days are missing a few hours.  They do not get 24 hours each day to carpe diem. A huge chunk of their day is spent being alone, doing treatments to clear their lungs.

They are sitting down, strapped into a vibrating vest and hooked up to a machine breathing in and out of a plastic mouth piece.

“The very therapies that keep people with CF alive take so much time that they are left with little time to enjoy life.” – Ronnie Sharpe

PatientWorthy is teaming up with CysticLife.org to spread awareness of CF. Here is a quick recap in case you missed Ronnie’s Call to Action for CF patients and advocates:

• Ronnie is the founder of CysticLife.org.
• CysticLife is a CF Community that came together to ask “Can exercise effectively replace one session of a traditional airway clearance technique?”
• Ronnie rounded up an awesome crew to conduct a research study.
• The study needs to be funded, so he partnered with a Silicon Valley startup AltheaHealth to create a crowd funding platform- Unleashus.org.

For more information on Airway Clearance Treatments for CF click here. 

There are 54 days left in the Unleash Us Campaign. That is 77,760 minutes. It takes 2 minutes to #jointhecause and donate.

If you’re interested in contributing to the CysticLife Community Driven Research Fund or helping us raise awareness about life with CF, don’t be shy! Reach out to us [email protected].  Don’t forget to share this post!