Myasthenia Gravis (MG) can make it hard for its sufferers to function normally whatsoever, as is the case for Cathy Liner, a woman living in Salem, North Carolina.
Cathy has dedicated her life to spreading awareness of MG, because, like pretty much all of the other chronic diseases we talk about here at Patient Worthy, it’s rare. And because it’s rare, nobody knows about it. Go figure. If I had a dime for every time I’ve written that…
On April 30th, Cathy joined her family at the 2016 MG Walk Snowflake Campaign in Raleigh. You might be thinking, “Snowflake? What the eff is a ‘Snowflake Campaign'”? I thought the same thing. Luckily, the article accounted for my confusion.
Well, let’s consider snowflakes. Do you remember, when we were kids, making those paper snowflakes? You’d fold up the paper, like, a trillion times and then take scissors to it like a beaver on a plank of wood. And finally, once you were satisfied with the hacked-to-nothing paper in your hands, you’d open it up and feast your eyes on the masterpiece you, for the most part, unintentionally created. What did our teachers always point out once we were all finished? Do you remember?
No snowflake looks the same.
Each one is special and unique, like the sweet little children we were.
What the MG Walk Snowflake Campaign wanted to accomplish was convince people with rare disease, specifically MG, that everyone is unique, thanks to the small parts of us that contribute to the whole. And that, like snowflakes, when people with MG stick together, they can make a BIG impact.
In honor of June being Myasthenia Gravis Awareness Month, Cathy, PatientWorthy, and every single person living with MG asks you to do your part in spreading awareness!
You have social media? Don’t lie. Everyone does. Sign on to your account and post a status/tweet/photo/update/whatever with this hashtag: #IhaveheardofMG.
Read more on Cathy here.
