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Everything You Want to Know About Myasthenia Gravis
“Myasthenia” means “muscular weakness”. According to a recent article in The Star, studies in Asia indicate that there are approximately five new cases of myasthenia gravis (MG) reported each…
Catalyst is Meeting with the FDA to Discuss the Future of Firdapse for Congenital Myasthenic Syndromes
Firdapse, or amifampridine phosphate, is a medication currently approved for Lambert-Eaton myasthenic syndrome, or LEMS. However, Catalyst Pharmaceuticals has been working to evaluate if it can aid other neurological and…
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Myasthenia Gravis Patients in Kenya Face a Critical Drug Shortage
According to a story from Daily Nation, Beneddettah Wangui of Kenya had been experiencing chronic pain since her teen years when she was finally diagnosed with fibromyalgia in 2012. However,…
<a href="https://pixabay.com/users/TambiraPhotography/">TambiraPhotography</a> / Pixabay
“When You Have to, You Can:” a Myasthenia Gravis Story From the Czech Republic
"It’s like when you suddenly shut off control over your muscles. Your will can’t affect it at all. “I say that I’m a ‘physical schizophrenic,’ and I can only do…
<a href="https://pixabay.com/users/sabinurce/">sabinurce</a> / Pixabay
A New Biomarker for Myasthenia Gravis Has Been Identified
According to a story from news-medical.net, a team of researchers associated with the University of Alberta made a significant discovery when the identified a never before recognized biomarker for myasthenia…
<a href="https://pixabay.com/users/analogicus/">analogicus</a> / Pixabay
The Challenges of Myasthenia Gravis Featuring Kemi Olawaiye-Dampson
According to a story from Find Me Cure, June is myasthenia gravis awareness month. Dr. Kemi Olawaiye-Dampson was first diagnosed with the disease after she gave birth to her first…
<a href="https://pixabay.com/users/StockSnap/">StockSnap</a> / Pixabay
Myasthenia Gravis and Sex: What Are The Impacts?
According to a story from findmecure.com, an often overlooked subject for many rare, chronic conditions is the impact that these long term illnesses can have on a patient's sex life.…
Let’s Talk Myasthenia Gravis During Awarness Month
June is myasthenia gravis awareness month! Myasthenia gravis (MG) is characterized by weakness and rapid fatigue of any of the muscles under voluntary control. It's caused by a breakdown in…
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The Five Latest Advancements in Myasthenia Gravis Treatment
A story from findmecure.com describes several of the latest developments in the area of myasthenia gravis treatment that patients should be aware of. The field of rare disease treatment is…
Rare Inspiration: A Myasthenia Gravis Patient Story
As I listened to her story I kept thinking, “You can’t make this stuff up.” Or at least no one would want to anyway. The first time I met Adeola…
Myasthenia Gravis Patient Didn’t Let Diagnosis Stop Her from Running in the 2019 Boston Marathon
When you’re diagnosed with a rare condition it can change the entire course of your life, at least at the beginning. But those living with diseases like these are fighters.…
<a href="https://pixabay.com/users/skeeze/">skeeze</a> / Pixabay
Study Highlights Long Term Benefits of Thymectomy Surgery for Myasthenia Gravis Patients
According to a story from EurekAlert!, a recent study revealed that the surgical removal of the thymus gland, known as a thymectomy, was able to provide long-term benefits for patients…
New Treatment in the Works for AL Amyloidosis Thanks to Collaboration
AL Amlyoidosis is a rare disease which causes a buildup of harmful proteins (amyloids) in organs such as the kidneys and the heart. This accumulation causes organ damage as well as…
Positive Results From a Phase IIb Trial of Firdapse for MuSK Myasthenia Gravis Published Online
Myasthenia Gravis (MG) is a progressive autoimmune disorder which results in the weakening of muscles. Most people with the condition are able to manage their symptoms with treatment and have…
<a href="https://pixabay.com/users/niekverlaan/">niekverlaan</a> / Pixabay
Positive Results from Phase 2 Trial for Myasthenia Gravis
The Myasthenia Gravis Foundation of America (MGFA) recently conducted a survey which found that most myasthenia gravis patients are not satisfied with their current treatment regime. These patients wanted a therapeutic…
<a href="https://pixabay.com/users/mwooten/">mwooten</a> / Pixabay
Global Phase 3 Trial For Experimental Myasthenia Gravis Treatment to Begin Before The End of The Year
According to a story from Euroinvestor, the biotechnology company argenx recently announced that it has gotten correspondence from Japan's Pharmaceuticals and Medical Devices Agency (PMDA) in regards to the design…
<a href="https://pixabay.com/users/sasint/">sasint</a> / Pixabay
Why Some Myasthenia Gravis Patients Benefit More From Surgery Than Others
According to a story from journals.lww.com, a recent study investigates the beneficial impact of a thymectomy operation for patients with myasthenia gravis. This procedure has been a common approach for…
<a href="https://pixabay.com/users/Free-Photos/">Free-Photos</a> / Pixabay
Turning Life Around: A Myasthenia Gravis Story
According to a story from image.ie, the Italian journalist Veruska Anconitano first began to experience symptoms of myasthenia gravis when she was a child. She recalls bouts of weakness affecting…
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Advocates Unite to Create New Center for Autoimmune Patients
A new partnership between two major players in autoimmune disease research recently hit the news. The American Autoimmune Related Disease Association (AARDA) announced a partnership with Allegheny Health Network (AHN).…
<a href="https://pixabay.com/users/3dman_eu/">3dman_eu</a> / Pixabay
Check out these Invaluable Resources for Myasthenia Gravis Awareness Month!
June is here - and so is Myasthenia Gravis Awareness Month! What is Myasthenia Gravis you say? Myasthenia Gravis (MG) is an autoimmune neuromuscular disorder characterized by weakness and rapid fatigue of any of…
<a href="https://pixabay.com/users/pgbsimon/">pgbsimon</a> / Pixabay
Having a Relative with Myasthenia Gravis Increases Your Risk, Here’s Why
If you have a close relative with Myasthenia Gravis (MG), you run a greater risk than the average population of being diagnosed with it. Additionally, you have a greater risk…
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Myasthenia Gravis Treatment Gets Orphan Drug Designation in EU
According to a story from GlobeNewswire, the biotechnology company argenx announced recently that its investigational therapy ARGX-113 was granted orphan drug status by the European Commission. This designation is based…
If You Have Myasthenia Gravis, Your Flu Shot Matters More Than You Might Think
First, I want to address everyone, whether or not you have myasthenia gravis. If you're able to get the flu vaccine, but haven't yet, you should get on that as…
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Myasthenia Gravis Patients See Relief on the Horizon
Biogen's third quarter earnings report isn't looking good these days, putting an uneasy cloud over the biotech sector as a whole. But there is a light at the end of…
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Living Well: Myasthenia Gravis Can’t Stop the Travel Bug
If you are living with myasthenia gravis (MG) or any other rare disease or medical condition, you may have the travel bug, and travel insurance may be worth the investigation. Let’s…
