Bravery – Happy Father’s Day

Post author:Kristen Lord
Post published:June 18, 2016
Post category:Rare Disease

Happy Father's Day Weekend! Whether you are a father with a rare disease, or a father of a child with a rare disease, you are a brave soul, because every…

Rob: A Rare Dad and a Father With Acromegaly

Post author:Kristen Lord
Post published:June 18, 2016
Post category:Acromegaly Rare Disease

Photo by Sandro Georgi Photography As a parent your main job is to protect your child from the terrible things in the world, but of course you know that one…

Get Involved

Ready to get involved with Patient Worthy? Share your authentic story with others. Raise awareness and inspire change!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Get Involved

Bravery – Happy Father’s Day

Rob: A Rare Dad and a Father With Acromegaly

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

Get Involved

Let’s Work Together!

Keep Up to Date

Learn More