This MPS Teen Will Make You Want to Look In The Mirror

Selfless. Alli Williams is selfless.

The 17-year-old received an MPS I diagnosis as a baby. Unlike many kids with MPS, she was lucky enough to receive a bone marrow transplant–something she doesn’t take lightly.

The transplant has given her the chance to live. To experience life with her parents, friends, and classmates. But to also live for other people–to bring awareness to the disease that plagues way too many people and families.

Wish Upon a Star,” a nonprofit organization near her hometown grants wishes to kids and teens who live with potentially fatal conditions.

And while many wish for fairytale adventures in Disneyland, front seat tickets to a Taylor Swift concert, or heck, a hot air balloon ride, Alli wanted something different.

She had one simple wish: to bring awareness to MPS. So that’s what she did! The organization helped her speak to the media about MPS and participate in community events, all in an effort to bring a voice to this terrible disease.

Winnie Nash

Winnie Nash

Winnie Nash, born and bred in Charleston, South Carolina, likes to think she’s sweet as tea. Passionate for people, stories, and a little bit of glitter, she has an especially soft spot for patients and their journeys. A writer with true disdain for clichés, Winnie catches every detail of a story—intently listening—craving the next word. Some may call it nosiness, but to her, it’s just wholesome curiosity.

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