Meme: Teach Kids to Advocate

Kids with rare diseases will often be dealing with doctors for their entire lives and helping them find their voice along the way is important. Letting your child speak to their doctors directly can give them a sense of independence and control over their healthcare while prepping them for a situation where you might not be around. Giving them the confidence to advocate for themselves is incredibly valuable.

Check out this article on how to help your rare disease child as they get older. 

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