Hope and Education for Carcinoid Syndrome

Carcinoid tumors are rare and most often occur in the lungs and intestinal tract. When they secrete chemicals into the blood stream, the follow symptoms may occur: skin flushing, facial skin lesions, diarrhea, rapid heart rate and difficulty breathing. When this happens, it is called Carcinoid Syndrome.

Lexicon Pharma recently launched www.aboutcarcinoid.com in order to increase education of the condition for patients, caregivers and doctors. They are also in the process of developing a patient advocacy group called The Carcinoid Syndrome Impact Survey, designed to bring together leading advocacy groups for greater education and research for the condition.

The goal is to educate the public on the detrimental effects this disease has on patients and family members.

Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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