You’ll Want to Read This About Dystonia

Dystonia is a movement disorder that makes muscles contract, sometimes regularly, sometimes randomly. It can cause abnormal, often repetitive, movements, postures or both.

Like others, this disease does not age discriminate; the age grouping is as follows:

Dystonia classification by age

  • Childhood onset – 0 to age 12
  • Adolescent onset – age 13 to 20
  • Adult onset – older than age 20

The earlier a person develops symptoms, the more body parts are likely to be involved. So it may help if those symptoms are somehow disrupted ASAP after diagnosis.

Deep brain stimulation (DBS) is a well-established management for the disease in children. According to one study, most children with secondary types of dystonia – including static lesions and progressive disorders – are well served by DBS but do have a reduced response to the treatment.

Adding up the equation: dystonia + children + deep brain stimulation = brain surgery. Whoa! I had to investigate this for myself.

reaction what wow omg dystonia
When you stop to think about what DBS…”WOW!” [Source: giphy.com]
The treatment is elective brain surgery where wire leads are implanted to the brain. These leads are attached to a brain pacemaker. Electrical impulses from the pacemaker will help control the inappropriate muscle contractions.

All the electrical impulses are regulated by a remote control. The remote control helps scramble the signals in the brain and change the conversations to improve the symptoms for the child.

A smidgeon of skepticism?

Me too until I watched Dystonia Boy and listened to his claims of DBS making him happy!


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