Tips for Becoming More Self-Empowered When Living with a Chronic Health Condition
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Tips for Becoming More Self-Empowered When Living with a Chronic Health Condition

When we are faced with a limiting health issue where performing “simple” everyday activities becomes a challenge, our self-confidence and self-worth can dwindle. This can happen with any health condition…

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Patient Story: Living with Dystonia

Recently, an article highlighted one man’s life journey after being diagnosed with rare cervical dystonia. Dystonia Dystonia is a chronic movement disorder, existing in the same family as the more…

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Coming to Terms with Painful Challenges
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Coming to Terms with Painful Challenges

Life is filled with endless ups and downs. The first 5 of my ongoing 20 years living with dystonia were pretty much nothing but down times. I experienced the most horrible pain…

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Slow Down to Manage Your Pain
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Slow Down to Manage Your Pain

How many of you find yourself rushing around and it’s causing you stress and pain? And if you already have pain, does it add to your pain? Are you trying…

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September 12: Virtual Dystonia Zoo Day
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September 12: Virtual Dystonia Zoo Day

  Do you want to make a difference in patient advocacy and rare disease education? Well, here's your chance. Every year, the Dystonia Medical Research Foundation (DMRF) holds a local…

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