There’s an interesting blog post you’ve got to check out—especially if you’ve been feeling guilty about telling people “No” while living with or caring for a loved one who has a chronic illness. This gal, Amber, has Sjogren’s syndrome, an autoimmune disease that is systemic and treatments are limited. And to complicate things, she also has fibromyalgia, another autoimmune disease and lives with sometimes debilitating fatigue and pain.
What really pushed my buttons—in a good way—was the fact that she’s sick and tired of feeling sick and tired—AND she’s no longer going to feel guilty about it!
Right ON, girlfriend! The Sjogren’s & fibromyalgia communities need more people like you for inspiration.
I don’t know what it is, but far too many people have a hard time saying, “No”—especially women and it needs to stop. Now. Maybe it stems from years and years of being dished up guilt about EVERYTHING as if it were a free sourball dispenser. Come on!
Amber’s got so much courage! It took her years to learn to finally accept her illnesses—that they weren’t going away. But somehow, she figured out how to just accept the fact that she doesn’t have control of her body and that she’s typically going to be feeling bad… hmm… just about every day and night. And she’s NOT going to apologize if she can’t do something—even when she promised she would. Right on!Do you have a chronic illness like Sjogren’s? How long did it take you to come to terms and accept it? Or…do you still feel guilty when you have to cancel your plans?