There’s an interesting blog post you’ve got to check out—especially if you’ve been feeling guilty about telling people “No” while living with or caring for a loved one who has…
Parkinson's disease is a progressive neurodegenerative disorder that slowly takes away a person's ability to perform even the simplest tasks. It is caused by the brain's inability to continue to…
A 10-year-old boy in Colorado will be ringing in the new year with a new kidney, and his parents couldn't be more relieved. Marcus Root suffers from cystinosis, a rare…
Rare disease living comes with its own set of highs and lows. Experiencing a myasthenia gravis crisis can be a terrifying ordeal. And not just for the person with myasthenia…
A little more than a year ago, a little girl in Michigan was critically ill. Doctors were hopeful they could help her, but there were no guarantees. Lilly Vanden Bosch,…
Cuando uno es joven, saludable y próspera, es difícil imaginar que es posible ser derribados por una enfermedad crónica, como la espondilitis anquilosante (EA). Como muchos jóvenes, "M" estaba libre…
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